Special Needs

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Comment by DJ STORMIE on October 14, 2010 at 10:38pm

Hello My Name is Lisa most know me as Stormie i joined this group to share with you How God has blessed me and My little lady Christina My name is Christina soon to be 19 on July 15,2010 . Today I share with you all some of me I am not like most my age . At age 3 I suffered from Acute lymphocytic leukemia (ALL) is a type of blood cancer. Then in 1999 my last chemo treatment I developed a high fever and went into a coma. My Aunt Lisa was then told i would never pass the mind of a 6 year old. Then I also would have Epilepsy is a brain disorder involving repeated, spontaneous seizures of any type. Seizures ("fits," convulsions). So Then in Aug of 2007 to best control my Seizures I had a Vagus nerve stimulation (VNS) is an adjunctive treatment for certain types of intractable epilepsy and major depression. VNS uses an implanted stimulator that sends electric impulses to the left vagus nerve in the neck via a lead wire implanted under the skin. I wear magnet buddy on my wrist to turn my vns on during on coming seizures. This is when my Aunt Lisa had no support so with her sense of humor she got involved in radio and internet to share some of what we gave up to keep me safe With the constant seizures we had to stay home all the time so we both managed to create ways to enjoy this situation in a postive way. I love to color and watch cartoons and she loves to share her music all over the world maybe{ All} had a new meaning to both of us.

Comment by Sandra Joseph on June 30, 2010 at 9:03am

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Comment by LaTrice Dancy on June 20, 2010 at 12:08pm

Hello my name is Latrice and my son is 14yrs w/CP, epilespy, physical&mental delays. He was born w/the ambo cord around his neck 3times and they had to bring him back when he was born. He is my angel. I am a single parent of 4 and at times I feel like I am the only one in the world goin threw stuggles. It is hard to maintain but I do because God is good. I would like to know if there are any other mom like me it would be nice to get to know. Thanks.

Comment by Mare on January 29, 2010 at 11:16pm

My son had Dandy-Walker Variant, CP, has had cataracts and now lens replacements, spinal fusion, and shunt. He's going to be 22 and still living at home. He can't get a job....we're trying to work with a local group to help him get semi-supervised housing. Blah! I'll be taking care of this kid 'til I'm 100. LOL I hope that we can get him out and on his own someday, so I can relax and not have to worry about him....I know I still will, but it'll be better if I can know that he's ok without me.

If anybody has any young kids with the same type of problems, feel free to ask me anything!

Comment by Brandy Cheshier on January 19, 2010 at 1:23pm

My name is Brandy I aM Michael's mom HE is a 4 yr old boy with Schizencephaly, cp, epilepsy thats what i know of right now Every family member has basically turned their backs on us for no real reason His father is absent his fathers family is absent my family is absent We only have each other and it sukx at times but i wonder if it really is for the best cause the few times that they have scome around it seems they have to force themselves to loves Michael He is so funny never cries, eats good, sleeps good, you can tak him anywhere and he is so wonderful he does watever he wants to do he basically doesn't know there is anything wrong with him and i wonder if thatisn't for the best to iff anyone can just let me know that we are not alone in this that would be so helpfull i know this is a hard thing to handle and not everyone can do it but i don't have a choice so y cant everyone else just try a little harder

Comment by mary on November 15, 2009 at 9:08pm

Just commenting on some of the things that are happening with the economy & health issues. I have a daughter with cerebral palsy and she has been out of school for four years now and I have been trying to get her into some kind of classes or program. I call and they tell me that all I can do is wait. that sometimes it takes up to five years to get a response from anyone. we have been waiting about three years now. I had an older son that passed away from cancer two and half years ago and she was very close to him and has gotten depressed. I do everything to try and make my family happy and not so sad from everything that happened. I have my days where I just cry and wish everything that is happening would just stop and that my family could be ok again. We love each other and take care of one another. I really hope that the next coming year is a better one for us all.

Comment by sherryl glasser on November 14, 2009 at 10:41am

hello to all as the year ends theres litterally light at the end of the tunnel I can't wait for 09 to be over

Comment by Tammy Lessick on November 14, 2009 at 9:35am

He everyone. Giveaway is still going on for

Boardmaker Plus! v.6 ($399 value)

Comment by Bridget Bailey on November 14, 2009 at 7:51am

Thanks to all moms who responded. With over 80 stories and about 25 pictures my www.momsincommon.org web site has been a big hit. Please keep the stories coming in especially about the holiday season and raising a child with multiple medical/developmental issues. Also we have over 200+ fans on facebook with a lot more stories to share. Looking forward to reading YOUR story.
Bridget

Comment by Cindy Carter on November 14, 2009 at 7:31am

Hi everyone, sorry that I have not been on here in a long time, crazy crazy around here, Rebecca has had alot of UTIs and I have been in school. I am going to try to do better :0) I hope that everyone is doing well and healthy.

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