Special Needs

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Comment by Kate ~Mom to 2 Princesses~ on June 28, 2009 at 9:41pm

o so im not the only one being neglectful here lol...heres a short version of whats been happening with us the past 5 weeks or so..Selena's meds were mysteriously as in kinda under everyones noses upped by her now former doctor when they werent working properly as a result she attempted to jump outta my hubbys car on the friday before fathers day. literally ripped teh seatbelt off of her and tried to leap out the window. they went in the course of 6 weeks from 10mg to 30mg. the doctor was contacted and never responded. in this time before the car incident she was being so hostile towards my hubby that he couldnt take her with us for 2 weekends. the weekend before this and that weekend. my hubby forced her "mom" to take her off the meds and did. we got her a new doctor, my hubby is meeting iwth said new doctor and her psychiatrist next month and has unofficially kicked the bitch off her thrown and has taken over medical guardianship but again this is all unofficially cuz shes basically just going along with it to avoid a fight...which will insue later, trust me i know how this will pan out in the coming weeks. or months. today(6-28) we got her and she was great for the ride to boston and the first couple of hours but as soon as we had eaten lunch and were trying to go back ot the expo she pulled a complete 180 and reverted back to the behavior of the past 2 weeks. at one point in the middle of a busy square she was clinging to a glass door outside of a department store i lifted her up and tried to just stand her on the ground, used no force except to pull her off the handle of the door and she flung herself off of the door onto the pavement and started wailing like i had used all my might to fling her. i would never hurt her. she knows this. she then was weeping and crying for a good 20 mins before we got to a place to sit at which point my husband tried to understand what the hell was goin on. he saw the whole thing and knew not to feed into her games. and she refused to speak to him or any of us just wnated her juice and to do what she wanted. hubby called that crazy bitch and told her to be home soon cuz we had to bring her back, she bitched that she was at the library ON HER MYSPACE and HAD TO PAY HER CABLE bill first. wtf???????????????? not even showing signs of caring or concern. then we finally an hour later we drop her off shes pissed that she had to come back from her free time to punish her. which i owuld bet you a billion dollars she never did. grrr...vent over. i wont even go into what kind of inappropriate clothes she had on on a 60 degree day in rainy boston, or how dirty she was...how can anyone do this to their own child...and they wonder why shes emotionally damaged...must be the dad right? who busts his butt for both of his kids just cant be with his oldest's mom cuz well she cant be a responsible adult....WHY WONT THEY SEE?!

Comment by Deb Johnson on June 23, 2009 at 8:19am

I don't know if this is the right group for me or not. I am the one with disabilities including bipolar/anxiety disorder and have been on disabilility all my 10 year old youngest childs life...and it is NOT easy.

Comment by RP Mom on June 22, 2009 at 8:11pm

Hi Everyone!!! Sounds like everyone has been busy. We had computer issues so I have not been on much. SORRY. We started summer school today and my little guy was so happy to go back LOL!! Family in town for the next two weeks. Will check in soon!!

Comment by TMR on June 21, 2009 at 11:22am

Here I am! Here's the post on just put on my Facebook:

Finished the 5K in 43 minutes! That includes a pit stop at a grocery store to use their bathroom, lol I knew that would happen to me, and several Seattle hills I HAD to mostly walk up. I was NOT prepared for HILLS! I did about a 13 minute mile based on all that. I didn't trip nor roll an ankle! Sneezing a lot--which is so weird--something I often do after running. I know I can beat that time next 5K! *grin*

I'm in Seattle with my daughters. We stayed in a hotel 3 blocks from the start/finish line. I ran at 8 am. Breanna's taking a nap, Amanda's watching tv, and I am... well, duh. :O) We are going to the Pacific Science Center at 1:30. They have Animal Grossology going on. We will see an IMAX 3D underwater show and then later this evening we will go to the EMP. That's the Experience Music Project the other Microsoft guy built, Paul Allen, yeah that's it! Tomorrow we plan on going to the Woodland Park Zoo after checking out of the hotel. Breanna and I will drive back home and Amanda will drive back to Bellingham to her apartment. However, she is moving home July 1st rather than September 15.

Thank you ladies for voting for my picture! It was taken years ago in Ellensburg, Washington. That's on the east side of the state, just across the pass. (Snowqualmie Pass) My mom lived over there for 5-6 years and bred quarter horses. The moved back to Tacoma 2 years ago. Thank God! I hated the distance a 2+ hour drive. (Which is nothing really!)

I need a nap but wanted to stop here and say hello first. OH... I took my college COMPASS test and did.... well.... my math sucked royal! I have to take a math course lower than college level first. Sigh! I forgot how to do algebra... it's been 20 years! My reading I scored an 86, and my writing I scored a 98! So, I am able to take college course English/Comp 101 for credit. I started my classes on Friday. Waiting to get my school books delivered. I bought 3 used books that were required and it cost $221.00!!!! OH MY! I now see why people take longer getting a degree that don't get grants and scholarships. It isn't cheap, that's for dang sure.

Have a great weekend everyone! Hugs and blessings to you and your families.

Comment by Cindy Carter on June 16, 2009 at 8:54pm

Hey everyone, I have been a bad friend too!! :0(
but Rebecca has had such bad days the last few days. but we know what is wrong with her now!!!!
She has a congenital narrowing of one of her ureters, that connects the kidney to the bladder., so the dr. wants to observe her for a while, he put her on furadantin for a long term thing,
but if she starts havin more pain then they will put a stint in the ureter to open it up, which will be nothing more than putting her to sleep and using a catheter to put it in,, so it is not a bad surgery.
but like I said he wants to watch her first!!, so I am starting her on the antibiotic tomorrow and I am going to give it a week and if she is not acting better by then, then I am calling them and begging or demanding them to do the surgery.

this has probably been bothering her off and on for a long time, I guess her whole life!!
I wonder if as she has grown maybe the narrow part of the ureter has not grown with her or something and that is why she is having more infections?????
I wish we could have known earlier, it could be the reason for alot of her fussing?????
oh well atleast we know now!!!!!!!

Comment by shelley k on June 16, 2009 at 4:38pm

hi everyone, i know i have been a bad friend over here but i have been a bit busy... i'm trying to start a new business and helping my husband with his and my writing plus dealing with my special "little lady" i have been in over stress mode for a while!

tammy, i'm sorry about your foot, but glad to her you will still participate in the run/walk.. i voted for your picture! beautiful picture, where is it? good luck with that!

RP congrats on the wonderful iep! it's such a good thing when you can walk out and smile..

i'm not sure i let the group know i started a second blog about a month ago called "the playground princess" it revolves around the 10 years i built the first fully inclusive playground in our state and how i went on to help other communities around the country... and still trying to help thru this... it's in my heart! anyhow, stop by there and follow, maybe i can help u guys in some way!

it seems like the group is getting bigger which is nice so "howdy" to all of the new ppl i have yet to meet, hope to see you around!

smiles and hugs to everyone!
shelley

Comment by Cindy Carter on June 11, 2009 at 12:21pm

congrat on going back to school Tammy!! I want to go to school in the worst way I just can't get any help, only loans!!! and I can't risk getting loans and then something happen and I can't finish school!!! UGH!!!!
I am hoping this medical transcription course in going to have enough people to make the class this year, I can do that 2 nights a week for 9 months and go to work from home!!!!!!! What could be better!!!!!!!!!

I will go vote for the picture in a bit!! Hope you get it!!
We have been beyond busy!!! Rebecca had a sonogram of her kidneys and a voiding cystogram and she does not have reflux but one of her kidneys is swollen so we are going to a urologist monday morning to see what he thinks
we went yesterday to get Rebecca on the waiting list for the medicaid waiver program, for nursing respite, there is a 5 year waiting list!!!!!!!
by the time she gets it I probably won't be able to take her anywhere anymore and will need someone to watch her while I get out and go to the store.
artistasoyyo- glad that you are able to get back to your painting!!!
I know you will be soooo happy!!

Comment by Artistasoyyo on June 10, 2009 at 11:32pm

Great. Clicked on the delete by accident....ugggg!
Hello all. Been busy like a bee. Been working on my craft...painting and some crafts for a fund raising and raffle for my church. They need all the help to build a new church. I'm donatiing my art work and crafts.

Thanks TMR for your thoughfulness. My brother enjoyed his visit. And my son is not a happy camper. He is in camping and the only thing that keeps him going is if he has a perfect attendance for the next 3 weeks he gets a gift card. He is looking forward for that. He got one last year.

TMR. I like your picture sooo cute. Good Luck! I voted for you.
Take care...nite all.

Comment by RP Mom on June 8, 2009 at 3:32pm

Just stopping in to say hi. Last week was super busy here and this one is going to be the same!! Sorry I am not on as much, but thinking of you all!

Comment by TMR on June 7, 2009 at 2:44pm

Good afternoon all! Well, my foot IS NOT broken, Amen! I really thought I was done for but my xrays on Wednesday came back okie dokie! I do have stress injuries, but not a stress fracture. My three months of training for the June 21 LAF 5K in Seattle was too much on my left ankle. I haven't ran in 8 or 9 days now... so sad. But, I have been walking 3 miles a day the past two days. I just have to goooo slowwwww and wear a brace. I'm still participating in the 5K event no matter what!

I need a favor, please. Many of you know that I am starting college in the fall to become a Registered Nurse. Feels funny starting college at 40, but hey, why not. Anyway, I have been submitted for scholarships via FastWeb and other resources. One I submitted for is a photo contest of MY MOST FAVORITE PHOTO EVER TAKEN. It's a $1000.00 scholarship and I hope you will vist the link and vote for my photograph. It truly is my favorite of all time. Please feel free to email your friends and family or tweet my picture link to get me some votes. I really appreciate the help and support!!!!

My Favorite Photo (I've Ever Taken) Brickfish

Artistasoyyo, that's awesome news about your son doing so well. It's nice your family came to visit too. I've been thinking about taking an art/painting class. I'm quite creative, but it's like my painting strokes are blocked by something in my brain, lol.

I hope everyone has a productive yet peaceful Sunday.

HUGS! Tammy ~

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