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Support for Disabled moms&women

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Support for Disabled moms&women

This is a forum for anyone who is disabled in anyway, who needs a friend or two to talk too. Bring all your problems here and maybe we can help one another get through those unbearable days or even the great Happy ones also!

Members: 50
Latest Activity: Feb 11, 2011

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getting use to being disable 2 Replies

Started by patricia wilson. Last reply by Peggy Gorman Jan 16, 2010.

Does your Dr. think it's all in your head??

Started by DeeJay Quick May 27, 2009.

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Comment by Debra Gibbs on August 10, 2010 at 6:36pm
Jacqueline Dee Whittig , I read your post and I feel so for you. I can also relate. Have you gone to a doctor (Shrink) and get meds for the depression. It will take time for your body to level to it where it works but with a positive mind you will finally find that "month without depression".
Congrats on your Granddaughter. I know she will always be the one there that will get you going.
I, too, have probs with the hips and legs. I have to admit to just sitting around and doing nothing, BUT getting up and walking small walks then pushing yourself to go a few steps more each time, you will find that your hips and legs will (yes hurt in the beginning) start hurting less and less, NO they will never be without some pain, discomfort, but really it does help some.

I have Fibromyalgia, bleeding bladder (from raidiation treatments)and it is an overactive one also, two ulcers inside my stomach, sever arthritis in the base of my head to the neck, the lower back, both knees (injections twice and it did not help at all), and in my hands where I have had to slow down here with the typing, and I love to crochet but I have to go slower than before. I also have lymes disease, sleep apnea, and major depression. as of the 5th of this month Iit has been 6 years since my Cancer surgery, Xmas eve will be my 6 th year Cancer free (waiting on test results now). Every three months I am checked and have tests.
MY weight.......OMG.. I blew up to 337 lbs at my highest. I am at 282 right now but that goes up and down all the time.
You talk about not going out.. I am there with you too. I only go out to my doctor appointments and I do my shopping at the local Super Walmart once a month. I can only handle being out that much. My eyes went pretty bad when I was in the Hyper baric Oxygen for treatments to my bleeding bladder. Down fall of the machine it does mess up your eyes. So I while I can see, I have no depth perception . So I sold my van and I can not wait till I can drive again. More so a feeling of trapment at times.

I hope that you can find something that will help you Please check out going to a physcologist. I never thought I would be with one, but he has helped me so much. I still get down and cry and all, but it is so few times.

Think positive and go for it.
Dena Vogel.
I understand your pain also. I get so mad when I can not do simple household things. Even cooking can be a pain in the --s.
Dont know what meds they have you on but I have been taking Lyrica for my Fibro pain, you start out with low dose but as you go you talk with your doctor and they will increase it as you go. I am now at a point of asking for more, Been on them for over 2 years now.

I was hanging curtains Sunday and I lost my temper with myself. I am so tired of not even being able to get them to go into the hooks. Ironing I never minded, now there is a basket I am going to have to do it soon, I can not find alot of my clothes.... LOL
I hope that you find some relief soon.
You may not be able to Play the games but being there and watching your son is something that he will remember for all of his life.
Fibro is a disease that not only takes your body , it can take your mind if you let it. Stay strong, fight it and you will find a medium place where you can feel comfortable.

all have happy days and keep them free of pain
Debby
Comment by dena vogel on August 10, 2010 at 3:43pm
Hi, My name is Dena. I have Fibremialga (sp). I started off with bad lower back pain. I've had spine injections. etc. and have had no relief. I take pain meds that are not very strong, so I can function. I have a very active 8 year old boy and very into sports. I can not play with him any more and I get very mad when I can not participate in his sports.

My husband is having the lower pain problems starting. What a great couple? I have not worked for 3 years after I was put on Medical leave from a preschool teaching job.

We moved to a ranch style home this past November and it is better for me. I still do house work, still unpacking boxes from the move.

Will that is me in a not shell.

Thank you for letting me vent.

Dena
Comment by Jacqueline Dee Whittig on July 20, 2010 at 9:45am
Hi everyone! I hope everyone is doing well. I am at the point where I don't want to go out of the house anymore. I am so down on myself, and I know a lot of it is not being able to do the things I use to, as cleaning, grocery shopping, etc. Now I feel so alone. My husband had been going to work, and working over time for themm a camper. I am proud of him, but I miss him and the children. My daughter brought in her boyfriends litle boy for awhile, which it hurt me, because her daugher is right here. She asked her mom, "Why didn't you love me?" It killed me. I carry the guilt, and it pours on the depression even more. What on earth do I do? My hips and legs are getting so bad, I can't get around. No more climbing the stairs for me. I owe too much on the house to sell it. I would honestly give it away for the motgage if I cold. Now am dreaming good, ha! They have to have something for depression, so people would want to help you and be around you. Here when I got diagnosed with bleeding ulcers, gall bladder problems, obstructive sleep apnea, my feel and legs swell up so big, they turn into freckles. Then came the seizures. But I am blessed to be able to take custody of my grand-daughter Jenna. She was born without a thyroid so sick, she almost didn't make it. She was legally blind in her left eye, which now we got surgery done on her eye and they reattached the muscles to her eyes. Some people would think Jenna was too much, But in fairness,she has helped us. We have more motivation then we did. She has a great sence of humor, the teachers at the school adored Jenna, I am the one that has to straighten my life out and get "happy"! But for the life of me, I don't know what is causing all the depression. There is times, I feel like my brain is going to fly out and hit the wall. Constant worrying. Then what does that do to me? I hate myself even more. I think I am the ugliest person alive. I do not want sympathy. I want help. I am 58, and just once I would love to be not depressed for a whole month. Just to be able to get around and have fun. I try, but my back is so bad, and they can't cement it, because of all the other things wrong, that I willl live this way to the end. Thanks for listening. It was one of these days, I just had to let some feelings out. I just felt like I was going to explode. I try to be there for everyone here and there, but it is getting the best of me, to where I want to hide outl Thanks for listening and may God Bless you all!
Comment by Jacqueline Dee Whittig on July 3, 2010 at 2:36pm
Oh Debbie, I will definitely want you as a friend. My husband is like yours. He does all the running, errands, etc. Now I do have help cleaning and cooking. While he is on nights, they do not want me by myself, so a aid comes in, runs the sweeper, dusts, and cooks. I am in a hospital bed, something I never dreamed of. I dreamed of taking a vacation. Well, my social worker came in, and seen I had mold in my bahroom. (We had remoldeled once, years ago. She said Jaci, I am putting a new bathroom in for you, through Lifestream. I cried. Well, my doctor said, get a whirlpool tub. It will help you. So I let my social worker know. But I got to thinking, I can't take a bath, I can't get up. So we have to stick with the shower. I told you I was immaculate before. I had some church women that came in, and said, "Jaci, we could eat off your floor!" Not now. It hurts. And now I know why I was doing dumb things like chasing Jenna, my grand-daughter in the halls of the hospital. I was having a seizure. We didn't know about them then. I was hullinataing. He said Jaci, why would Jenna be here. I still thought she was. I said because she wants me. He said think about it? Why would Jenna be at the hospital in the middle of the night by herself. I set, and finally said, she wouldn't. I had even took the hoses out of my nose that went into the stomach. He, the nurse, thought they had gave me a extra dose of drug by mistake. Seizures are terrible. Debbie you were my friend on Extra, but we just didn't get back to each other. I would love to hear your stories. Please go to my page or comment page and e-mail me. Hugs, Jaci
Comment by DEBBIE DUFFY on July 3, 2010 at 2:21pm
Jacqueline;
I saw what you wrote to Terri....It was like I was writing it myself, I thought nobody could understand why I don't go any where but the Doctors. My husband is so great ,he does the shopping and everything.I also have a sister that has depression ,although she goes out in public in other ways she is more severe in the many other facets of depression.The more I read the more I feel attatched to you all. Please add me as a friend also I need all I can get .
Comment by Jacqueline Dee Whittig on July 3, 2010 at 1:59pm
Terri, I forgot to tell you, with all of my disabilities, obstructive sleep apnea, seizures, stomach, pancreas, discs, spurs, etc. and my husband had his heart attack last year on New Year's Eve, 2009, we go cusody of our grand-daughter age 12. Nine back then. She has helped us alot. I wouldn't know what to do without her. I have had more lives than a cat! Jaci
Comment by Jacqueline Dee Whittig on July 3, 2010 at 1:55pm
Terri, There is nothing funny about Bipolar or depression. I never go out, I think people are talking about me, laughing at me, etc. I feel for you. The only places I go is the doctor's office, hospital, and that is it. I hate it. I use to be so immaculate, caregiver to my mom, dad, and sister. My husband had a heart attack last year, and if anything happens to him, I don't know what I would do. Are y ou on medications? You know I have tried so many with no luck. I had bleeding ulcers so bad, they ended up taking over half of my stomach out. You would of thought I would of lost weight, but it was a blotched up surgery, and I couldn't even keep water down, so I did lose weight to begin with. But then they were going to put a feeding tube in, instead, I had two more stomach surgeries, bowel hooked up to the stomach, and I believe one thing. The ulcers were from worrying. I am definitely a worrier and a perfectionest. Not anymore about the perfectionest. I had to give that up. I have to settle now for whatever, and I hate it. Everyday, are you in a different mood? I am really sorry to hear this. I have been depressed about all my life, that is why everything had to be perfect. My father expected it out of me. My whole life I gave to my family. No vacations, nothing. I have no regrets being a caregiver to my mom, dad, and sister. But it would of been fun to go on a vacation. Instead they would say, why if we need you? Anyway, if you need someone to talk to, I am here for you. I have wrote you once before, I believe. I may be able to help you by talking. Hugs, Jaci
Comment by Terri Sas on July 2, 2010 at 9:46am
Hello group. I am a newbie here. I am a single mother of 3 teens and I suffer from Bipolar, Severe mood disorder and GAD. I am on this site hoping to meet new friends and find others that are going through the same things in life that I am. Feel free to add me as a friend if you want. :) Have a great day!
Comment by louise mccloud on May 5, 2010 at 9:06am
It's so nice to have people to share with. I always feel so alone, but this site, well, just hearing from others with disabilities, it makes me feel okay, better about myself, I love all of you and I am so grateful to Ellen for Momlogic and the wonderful person who had the idea for this group.
Comment by louise mccloud on April 25, 2010 at 7:36am
It took me 35 years before I was able to start confronting a horrible past, I was sexually, mentally, physically abused by both my mother, father and a brother.

I've bene disabled for over 15 years because of it, I have PTSD, agoraphobia, severe depression, anxiety, and 5 years ago, I had a bad fall which resulted in major leg surgery and now severe arthritis in both legs (I use a walker) and live in a really nice, but disabilities apartment.

I'm on 9 medications I take every day and see a psychiatrist, therapist, a primary (I now have high blood pressure and cholesterol) and take medication for those too. I love Momlogic and this site is wonderful. There is so much discrimination out their, I hate going out, so I'm really grateful I finally got a home computer, I can't believe how others (for the most react to those of us with disabilities, sometimes I feel others are afraid to come near me because they might "catch" my problems, taking a bus is hell, I get more insults from bus drivers who "don't feel I have the right to take the bus since I can't walk like normal people", etc.,

Anyway, this site is hard, and this is hard for me because I love Momlogic and usually have a lot to say. But thank you, this site is a blessing for those of us who suffer from some kind of disability.
 

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